Research
My team and I performed interviews with pharmacists and patients
In order to better understand the needs of both patients and pharmacists, with the help of our sponsors,
we had the chance to interview five pharmacists and five patients.
Patients
For patients, there are a lot of obstacles need to overcome. For example:
1. When the medication was coming
2. Who was bringing the medication
3. When were they starting the procedure
4. Whether they'd have a nurse to help
5. "Once the medication leaves office, they do not care; they just provide medication and leave the
situation as is."
Interviewees mentioned that it was frustrating and overwhelming to get a bag full of things that you
have never seen before.
There are NO resources to know whether what you were doing was correct because the
instructions are
usually not detailed/comprehensive enough - lacking details like how fast to give the
medication, the correct preparation with
medication before you even inject it (e.g. break it and put it in the back and shake it before putting
it into the saline solution, drip it for a
certain amount of time), etc.
Moreover, sometimes there were conflicting instructions between what they were given vs. told.
Our interviewees mentioned that at the hospital, the infusions were
every 10 hours but after the patient been discharged to home, it changed to every 12 hours without
telling a reason.
Although home infusion can be wearisome, patients usually prefer to stay home. However, when the
patients leave the hospital, it is hard to
get in touch again. Sometimes, the package even does not include contacts or pharmacy
information.
Pharmacists
We had learned a lot from pharmacists, especially the information regarding HIPPA; for example,
they need patients to sign the consent form before texting.
Some of the regulations even affected our software design decisions.
According to pharmacists, most people do not know about home infusions until they are actually
prescribed, so it may not be that common in the first place. Home infusions are usually the
last thing that they resort to when infections are that bad.
One of the pharmacists we interviewed mentioned that she worked with the technician team so that each team
has a designated pharmacist and technician to work with specific patients.
Although they teach patients how to do it and there are some introduction printouts of infusion therapy on their
website, learning how to infuse the medications on their own is still quite tricky.